Carelines

Carelines

Reaching out to a Community of Support

Welcome to Shail’s Carelines page! Thank you for coming to support Shail in journey of recovery. Here you can:

Brief about Shail Shah :

Shail Shah is 7 year old and suffering from acute lymphoblastic leukemia(ALL) cancer which is a cancer that starts from the early version of white blood cells called lymphocytes in the bone marrow.

He underwent 3 years of chemotherapy which completed just 3 months ago in November 2015. Immediately after 1 month he had a fever and doctors performed a bone marrow test and found the cancer has relapsed again with 60% blasts. This is called relapsed ALL and occurs only in 10 out of 100 patients who went through 3 years of ALL Protocol. Treatment for relapsed ALL is high chemotherapy for 3 months for getting him to the remission level towards bone marrow transplant. Doctor did performed match on family but didn't found 100% match among family hence doctor has started searching it in India and later in abroad. If bone marrow match is not found in family cost of transplant is very costly.

My sisters family has already spent significant amount (almost 30 Lacs - $50K) on 3 years of treatment and are in huge financial crunch as of now. For further performing entire treatment required some financial help to treat the child. We hereby humble appeal you to kindly donate as you find appropriate To help cover the treatment costs, the family has turned to the Bone Marrow & Cancer Foundation to set up this One-to-One Fund. Your generosity will greatly support this brilliant child.

Regarding Shail : Shail is very brilliant child and has gone through study till 1st standard as of now. Woin medals in Art, Drawing & sports activities as well even after going through Initial Chemotherapy treatments. Shail loves to play Out door games like football, Cricket & cycling also loves to play indoor games like Lego blocks, Carom, solving puzzles & cards.

Entire Treatment Record & Protocol in Medical Terms : Shail Alpesh Shah Diagnosed by Acute Lymphocyte Leukemia from bone marrow reported since 1st may2012at the age of 3 yrs, since than gone through entire K/C/O pre-B ALL on BFM protocol, had completed BFM protocol maintenance therapy since 10th Nov2015.

Now Shail again presented with C/O recurrent neutropenia, gradual fall in HB & PLT, fever off & on. Bone marrow examination done under strict aseptic precaution from right PSIS. Bone marrow aspiration report S/o Relapsed ALL (60% Blasts).

Further investigation done in form of CD marker of Acute Leukemia. Cytogenetic, RT- PCR for BCR ABL minor, Prognostic Panel, MLL gene rearrangement report awaited.

Shail needs salvage induction chemotherapy followed by bone marrow transplant. The cost of allogenetic bone marrow transplant will depend upon the source of HCT. Unfortunately allogenetic sibling donor transplant with elder sister Riya not matched at all and matched 50% with parents.

So we need to move ahead towards matched unrelated donor (MUD) transplant cost would be approximately 50 to 70 lacs(approx $75K to $100K) depending upon the Hematopoietic Cell Transplantation (HCT) marrow registry from where the Hematopoietic Cell Transplantation (HCT) will be procure.

Treatment Record till Time: Shail admitted in Sterling hospital at Vadodara, Gujarat, India since 31st December 2015 & just complete 2nd cycle of Chemotherapy as of now & under closed observations of Doctor's team & Nurses as his entire counts (HB, WBC, Neutrophils & Platelets) low due to heavy doses of Chemotherapy drugs. Location & Treating doctor details- Treatment going on in Sterling Hospital at Vadodara.