Helpful Resources

•  Fundrasing
•  Housing
•  Insurance Assistance
•  Organizations
•  Software
•  Transportation

 

Fundraising

National Transplant Assistance Fund (NTAF)
150 North Radnor Chester Road, Suite F120
Radnor, PA 19087
Tel: 800-642-8399
Fax: 610.535.6106
NTAF@transplantfund.org
www.transplantfund.org

  • Fundraising assistance and donor awareness information.


National Foundation For Transplants
5350 Poplar Avenue, Suite 430
Memphis, TN 38119
Tel: 800-489-3863 or 901-684-1697
Fax: 901-684-1128
info@transplants.org
www.transplants.org

  • NFT provides healthcare support, advocacy, and financial services to transplant candidates and recipients nationwide.

Housing

Hospitality for Family and Friends
Tel: 516-967-8015
Fax: 516-570-0075
hkotler@aol.com
www.hfff.org

  • Provides access to free hotel rooms in New York City for a brief stay (1-3 nights).


National Association of Hospital Hospitality Houses
PO Box 18087
Asheville, NC 28814
Tel: 828-253-1188 or 800-542-9730
Fax: 828-253-8082
www.nahhh.org
helpinghomes@nahhh.org

  • Referrals to free or low cost lodging near medical facilities.


Insurance Assistance

Carter & Lay, Attorneys at Law
803 Prince Street
Alexandria, VA 22314
Tel: 703-549-0076
Fax: 703-549-0016
www.carterlay.com
contact@carterlay.com

  • Help with insurance problems.


Patient Advocate Foundation
700 Thimble Shoals Blvd., Suite 200
Newport News, VA 23606
Tel: 800-532-5274 or 757-873-6668
Fax: 757-873-8999
www.patientadvocate.org
help@patientadvocate.org

  • Publications, help with insurance problems, attorney referrals.


Patient Advocacy Coalition
850 E. Harvard Avenue, Suite 465
Denver, CO 80210
Tel: 303-744-7667
Fax: 303-744-7876
www.medicalreporter.health.org/
tmr0497/PAC.HTM

  • Helps resolve insurance reimbursement problems.


Organizations

American Cancer Society
1599 Clifton Road, NE
Atlanta, GA 30329
Tel: 800-227-2345
O
r 404-320-3333
www.cancer.org

  • Publishes brochures on cancer and treatment options, support groups for cancer patients and their families


Aplastic Anemia & MDS International Foundation, Inc.
P.O. Box 310
Churchton, MD 20733
Tel:410-867-0242 or 800-747-2820
Fax: 410-867-0240
help@aamds.org
www.aamds.org

  • Serves as a resource for patient assistance and emotional support; provides educational materials and medical updates; financially supports research to find effective treatment and cure of aplastic anemia, myelodysplastic syndromes, and related bone marrow failure diseases.


Association of Cancer Online Resources
173 Duane Street, Suite 3A
New York, NY 10013
Tel: 212-226-5525
www.acor.org

  • Cancer support mailing lists as well as an internet based knowledge system


Blood & Marrow Transplant
Information Network

2310 Skokie Valley Road, Suite 104
Highland Park, IL 60035
Tel: 847-433-3313 t
Toll free 888-597-7674
Fax: 847-433-4599
help@bmtinfonet.org
www.bmtinfonet.org

  • Patient-friendly handbooks, including one in Spanish, and a quarterly newsletter about transplantation. Links patients with survivors who can provide emotional support. Maintains an online Directory of Transplant Centers in the US and Canada, an online directory of drugs used during transplant, and an online Resource Directory. Offers attorney referral for patients who have insurance disputes.


Blood and Marrow Transplant Resources
1208 E. Hermitage Road
Bayside, WI 53217
Tel: 414-352-3219
mytransplant@sbcglobal.net
www.BMTresources.org

  • An internet site for information, encouragement, and support for those having or considering a bone marrow or stem cell transplant. Offers a book entitled, "Over 140 Things You Need to Know about Your Autologous Bone Marrow or Stem Cell Transplant", written by Mark Patton, the World's Most Transplanted Person. A portion of the proceeds from the sale of this book are donated to The Bone Marrow Foundation to help patients that need financial assistance with their transplants.


Cancer Care, Inc.
275 7th Avenue, 22nd Floor
New York, NY 10001
Tel: 212-712-8080
Cancer Care Counseling Line
Tel: 800-813-HOPE (800-813-4673)
info@cancercare.org
www.cancercare.org

  • Publications, counseling services and financial aid.


Cancer Federation, Inc.PO Box 1298
Banning, CA 92220
Tel: 951-849-4325
Fax: 951-849-0156
www.cancerfed.org
info@cancerfed.org

  • Helps patients by providing information, counseling, and educational materials

Children’s Organ Transplant Association 2501 COTA Drive
Bloomington, Indiana 47403
Tel: 800-366-2682
Fax: 812-336-8885
www.cota.org

  • Provides financial assistance for children seeking a bone marrow transplant


Coalition of Cancer Cooperative Groups
1818 Market Street, Suite 1100
Philadelphia, PA 19103
Tel: 877-520-4457
Fax: 215-789-3655
www.cancertrialshelp.org

  • Improve awareness of cancer clinical trials, facilitate access, and promote participation.


CIBMTR, Medical College of Wisconsin
8701 Watertown Plank Road, P.O. Box 26509
Milwaukee, WI 53226
Tel: 414-456-8326
Fax: 414-456-6530
cibmtrcontact@nmdp.org
www.cibmtr.org/

  • Statistical information on transplantation


Leukemia and Lymphoma Society
1311 Mamaroneck Avenue
White Plains, NY 10605
Tel: 800-955-4572 or 914-949-5213
Fax: 914-949-6691
www.leukemia-lymphoma.org

  • Publications, support services and financial aid.


Lymphoma Research Foundation
8800 Venice Blvd, Suite 207
Los Angeles, California 90034
Tel: 800-500-9976 or 310-204-7040
Fax: 310-204-7043
www.lymphoma.org
helpline@lymphoma.org

  • The nation's largest lymphoma-focused voluntary health organization devoted to funding lymphoma research and providing patients and healthcare professionals with critical information on the disease. Offers free personalized information, assistance with finding clinical trials, emotional support, financial assistance, current information, treatments and research on lymphoma.


National Bone Marrow Transplant Link
20411 West Twelve Mile Road, Suite 108
Southfield, MI 48076
Tel: 248-358-1886
Toll free: 1-800-546-5268
www.nbmtlink.org
info@mbmtlink.org

  • Links patients with survivors, publications.


National Institutes of Health (NIH) / National Cancer Institute
Office of Cancer Communications
Bethesda, MD 20892
Cancer Information Service:
800-422-6237
www.cancer.gov
www.health.nih.gov
cancergovstaff@mail.nih.gov

  • The U.S. Government’s main agency for cancer research and information; offers numerous free publications


National Children's Cancer Society
1015 Locust Street, Suite 600
St. Louis, MO 63101
Tel: 314-241-1600
Fax: 314-241-1996
cpatton@children-cancer.org www.nationalchildrenscancersociety.com

  • Financial aid, fundraising assistance.


Software

Medical Enrichment Technology, Inc.
6780 Abrams Rd #103-175
Dallas, TX 75231
Fax: (214) 221-8885
medwiz@medicalexpensewizard.com
www.medicalexpensewizard.com

  • Let Medical Expense Wizard show you how to save time and money by completely tracking your hospital, physician, pharmacy and other medical bills with ease

Transportation

Air Charity Network
4300 Westgrove Drive
Addison, TX 75001
Tel: 877-858-7788
Toll free: 877-621-7177
Fax: 214-234-8459
www.aircharitynetwork.org
execdir@aircharitynetwork.org

  • Provides free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.


Angel Flight New England
492 Sutton Street
North Andover, MA 01845
Tel: 978-794-6868
Toll free: 1-800-549-9980
Fax: 978-794-8779
angelflight@angelflightne.org
www.angelflightne.org

  • A national volunteer network of pilots that provide free air transportation for patients.


Corporate Angel Network, Inc.
Westchester County Airport
One Loop Road
White Plains, NY 10604
Tel: 914-328-1313
Toll free: 866-328-1313
Fax: 914-328-3938
info@corpangel.org
www.corpangelnetwork.org

  • Provides free air transportation to cancer patients.


Mercy Medical Airlift
National Patient Travel Center

4620 Haygood Road, Ste. 1
Virginia Beach, VA 23455
Tel: 757-318-9175 or 1-888-675-1405
Fax: 757-318-9107
www.mercymedical.org
mercymedicalops@erols.com

  • Manages and coordinates large-scale charitable air medical transportation programs

National Patient Travel Helpline
Tel: 800-296-1217

  • The National Patient Travel Center is a helpline that provides information on programs that assist patients with air flight to treatment at distant facilities